This past year has turned our world upside down. Last June Ryan started feeling tired and developed what looked like painful acne, but it wasn’t acne at all. By January his body was covered in sores that blistered, ulcerated, and went necrotic. On January 20th, his dermatologist told us she would be surprised if he lived more than six months. We held each other and cried for days. Then we made a choice. Worry and fear weren’t going to add a single day to Ryan’s life. Instead, we decided to make